7-Point Gratitude Challenge

NOTE TO READERS:  Our blogging activity has moved from WordPress to the links and locations below.  Hence, in the interest of time management and sanity, ALTALOMAN via http://altacities.com will no longer post content at this location or any WordPress site.

Flip②▶STORIFYFLIPBOARD

http://altacities.com

Once a month in 2015, my first New Year’s resolution has to do with spreading the advocacy of gratitude, generosity, charity, philanthropy, and service to others.  What better way to accomplish this than to republish the following?  So once a month (starting with the first day of each month and then for a total of seven days, you can expect the following message throughout these ALTACITIES and my other ‘social current see’ (including Facebook, Twitter, Linkedin, and Flipboard.

Take my 7-point gratitude challenge.  Make a gift of of any amount (but please consider at least $7) to any of the following suggaested charities in tribute to my 7-year period of remission from cancer. Of course, these are only suggestions (you can make your gift to any cause of your choice).  I just ask that you come back here to make a comment about the experience, adding to the ‘social current see’ of the topic.  Comments can be added below or at any of the common social media sites.  Share the post and pay it forward!
Flip②▶STORIFYFLIPBOARDBLOGGERINsync ® ★ SUBSCRIBE

photo

                 

NOW ▶Flip2CANswerWORTH another microblog created, edited and archived by ALTACITIES® http://altacities.com Flip2 ▶ the SCS * (Social Current See), including what’s up with our 8-year MCL survival journey ▶Content archived on Blogger, Facebook, Flipboard, Google+, Linkedin, ShowYou, Storify, Twitter, YouTube, Amazone Crossing

 

ADD COMMENTS, QUESTIONS AT THE END OF EACH POST ▶Flip②▶the SOCIAL CURRENT SEE

Flip②▶SLIDE SHOW ♥
Advertisements

Welcome to MyHope @ COH Page

Aside

Every year (this year the date was May 9), Dee Dee and I try to attend the annual BMT (bone marrow) patient reunion at City of Hope. For us, this was the seventh such reunion, although we have only attended three of these events since my August 2007 transplant.  But the good news to share is that we have made it to #7 and expect many more! Always, it is remarkable to see and mingle among the thousands of patients, caregivers, and COH staff at these events.

 
At this time, not only is it hard to believe that we are more than four years into our “retirement life,” but my treatment is entirely routine, nothing more than periodic follow-up visits to City of Hope.  Other than occasional infusions for immune system boosts, my health is better and more “normal” than before the transplant. However, I have been recruited by COH to be part of a clinical study to assay the long-term cardiology effects of stem cell transplants on patients and that study is now underway with periodic testing and examinations at the City of Hope campus.
 
Whatever we can do to give back to this marvelous treatment center for the gift of life we have been given, it was an honor to be given that opportunity.  And speaking of opportunities, please go to the link to see MyHope@COH, the newly-created page where you can join my friends and associates in supporting City of Hope.
 
For those of you who are not in the loop on these matters, Dee Dee and I also became the proud grandparents of EMMA KRISTINA KARLSTROM, born on May 2nd.  You can see the photos and updates in our SOCIAL CURRENT SEE links below.
 
photo
Michael & Dee Dee Foxworth

Founders, Curators, Webmasters, Microbloggers, Mobile Web INtrepreneurs, ALTACITIES

      
Latest tweet: I need your help to raise funds for City of Hope, a global leader in the fight against cancer, diabetes and HIV/AIDS… http://t.co/QEyCYYttun

When the diagnosis is certain, but the path is unclear

MYELOFIBROSIS : Just learned in the last few days that a close friend has been diagnosed with myelofibrosis, a serious bone marrow disorder that disrupts the body’s normal production of blood cells. The result is extensive scarring in bone marrow, leading to severe anemia, weakness, fatigue, and often, an enlarged spleen and liver.  The news was shocking to hear and a flashback to the time seven years ago when I was diagnosed with MCL (mantle cell lymphoma).

Given that fact that I did not know about myelofibrosis, nor that the disease is a type of chronic leukemia — a cancer that affects the blood-forming tissues in the body, I am on a web search for facts. Myelofibrosis can occur on its own (primary myelofibrosis) or it can occur as a result of another bone marrow disorder (secondary myelofibrosis), according to the Mayo Clinic.

An ‘orphan disease’ is one that has not been adopted by the pharmaceutical industry because it provides little financial incentive for the private sector to make and market new medications to treat or prevent it. An orphan disease may be a rare disease (according to US criteria, a disease that affects fewer than 200,000 people) or a common disease that has been ignored (such as tuberculosis, cholera, typhoid, and malaria) because it is far more prevalent in developing countries than in the developed world.

Needless to say, I have now exchanged multiple emails and made phone calls to potential sources of help and treatment for my friend, Randy W., who is about my same age, far too young to face the possible morbidity and the shortened mortality that I faced seven years ago before my August 2007 stem cell transplant from an unrelated donor.

Yes, my friend is in good care with a primary physician who made the diagnosis, but also, he has found that the physician is limited in knowledge about treatment for the disease.  Hence, I made a call on his behalf to City of Hope to arrange for a consultation that will happen shortly.  Lesson #1 :  Never wait for well-meaning medical systems to grant referrals to specialists, if that can be hastened.  By their nature, doctors study subjects literally to death; you just don’t want that outcome to prematurely become your own.

If interested in this topic further, you may want to read this deeply clinical blogger on the subject:
Perspectives on Hematology, Health Care, and The Profession of Pharmacy
publisher for
constant web and mobile communication
___
http://altacities.com  The alternate blogs ~ Productions by #ALTALOMAN
When you change the way you look at things, the things you look at change
___
Now a member of SCAGA }:{  alt@cities on paper.li 

6 years since our SCT at COH

Image

6 years since our SCT at COH

This coming Friday, May 10, will mark our return to City of Hope, Durate, CA, for the sixth reunion of SCT (stem cell transplant) patients like me. Not surprising is the fact that this is actually the 37th such reunion at the internationally-renowned cancer treatment and research center.

_____

and publisher of alt@cities on paper.li for
constant web and mobile communication
Also see : exit Everything ||  HALLMARKS  ||  Our SCT Xperience
___
http://altacities.com  The alternate blogs ~ Productions by #ALTALOMAN
 
When you change the way you look at things, the things you look at change